A man who talked to a friend on Facebook is inspired to run 60 kilometers
Can? To know the answer, VOA correspondent Maxim Moskalkov said
In his report, he said that he has been living in Washington DC since 2015
They are a successful dentist.
And a painful back pain, discovering the cause of all these symptoms
Trying to. These symptoms appeared on her body shortly after her husband’s death
Occurs.
Tara Zia, founder of the Steve Person Syndrome Research Foundation, said: “I have been feeling very stressed since the incident at that moment in my life and I was very worried about my children. They were also very sad to lose their father. ” Even after consulting with endocrinologists, psychiatrists, rheumatologists, cardiologists and many other doctors, he had no idea what was going on, and the symptoms were getting worse by the day. “I could hardly get out of bed, I couldn’t take care of my children, my mother-in-law came to stay with me, I had to have a man to look after me and stay with us,” she said.

Finally, in 2016, they found a neurologist who diagnosed the disease as Steve Person Syndrome, a rare neurological disorder characterized by autoimmune disease. No, it’s just an attempt to get rid of the symptoms. The number of people infected with the disease is very low, only an average of one in a million people can get this stiff person’s syndrome.

“It takes an average of seven years to diagnose the disease,” said Tara Zia, founder of the Steve Person Syndrome Research Foundation. Seven years! “It’s a very strange thing. It’s often thought to be multiple sclerosis, Parkinson’s, or a mental illness, and it’s often misdiagnosed.” They did a few physical training courses at the Mayo Clinic, which helped her get some relief from the outbreak.

Meanwhile, in the Australian island state of Tasmania, Ultra-distance runner Shane James, nicknamed the Tasmanian Devil, knew these symptoms very well because he was suffering from the same disease. The Tasmanian devil whose scientific name is Harrisie) was a nickname given to Shane James, a carnivorous animal from Australia.

Runner Shane James said: “With this disease you will feel very tired, you will always feel a painful pain, it will be with you 24 hours a day, seven days a week, out of the house and you have to live with it, and you know that You have to live with it for the rest of your life. ”

They wrote a book and set up the Steve Person Syndrome Research Foundation, a non-profit organization, to raise funds for further research into the disease. Johns Hopkins University has been able to raise enough money to conduct a preliminary study of the disease. ”

James had been hoping all his life that someone would start researching the syndrome, and they had a conversation with Zia through Facebook. So, he decided to run 60 kilometers through Tasmania to help the Tara Foundation and draw everyone’s attention to the syndrome. He said: “You’ve really found a way to deal with Stiff Person’s Syndrome now, so it’s up to you what you do. And my desire was to fight and to fight really hard. You can’t imagine how difficult this disease is, but you have to deal with it to survive. ”

They told Zia, “What you have done is incredible to me and I will be forever grateful to you for that!”

It took Shane James three weeks to run the 60km, and the হাজার 20,000 he raised was sent to the Zier Foundation to fund research on the syndrome.